Blackwell Brothers Bone Marrow Transplant: Back Home...

Friday, March 16, 2012

Back Home...

We are back home and enjoying the break. We head back to duke on Monday to draw blood for the next study in hopes there is some graft there. I have been off all immunosuppressants for over 10 days now. If not, we are ready to start again! The results should be in the 26th of this month...

We have used our grill a ton and spent lots of time with the dogs. I've been able to work some but get tired pretty easy. (as to be expected) Otherwise, just taking it easy and enjoying the break. Forgot how nice HOME was!

Thanks for all the prayers, thoughts, cards, text end emails...

Go Heels!

2 comments:

Jon TarletonMarch 19, 2012 at 9:39 AM
No offense, but Go Pack!!!!
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M EllisonMarch 24, 2012 at 9:54 PM
The Ellison family keeps you and your family in our prayers. We are friends with John and Eliza. We are Catholic, so our daughter, Bella is learning what a "hail mary" is...which is full of grace...that grace we pray for you and your family as you all go through the second procedure. Bella has a list of special people she prays for every night, which your name has been added..she feels quite honored to pray for Ail's uncle Burns! I can't tell where Ali gets her wonderful personality from? She is such a mixture of John and Eliza!
Our 20 year old son is a sophomore at UNC, so go Heels! Woo!Woo!

Cord, Melissa, and Bella
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Thanks!

This is our blog to share the journey of a stem cell transplant between two brothers. Burns, who was diagnosed with CGD at age 2, and has been fighting the disease ever since. Burns needed at stem cell transplant in order to cure his illness. His older brother John, was recently tested by Dr. Rebecca Buckley, Burns' doctor since age two, and is a perfect stem cell donor match. With many prayers and advances in medicine, a bone marrow transplant is now an option for a "cure".

Here is where we begin our journey. Laura, Burns' wife, and Burns will be moving to Durham, January 1oth to be close to Duke. The blog will be updated by Laura, Burns, Derry (Burns & John Mom) John and Eliza (John's wife).