Today came in the third round of graft results. The second result had 10% in one line and 0% in the other. Unfortunately, both stem cell lines are now less than 2% donor cells. It seems the graft has been rejected and my original immune system has recovered. Tough news to hear.
Now we learn more about the next steps. Dr. Chao will be back on Wednesday and they all will discuss options from these results. From what we hear, most likely we will need to start over with another transplant with John as the donor again. But we will need to wait for all their minds to get together.
The cause of the rejection is an unknown. It will be interesting to hear what Dr. Chao thinks, but they have told us it could have been any of the following: a virus, my immune system rejecting the cells, my spleen has been enlarged and that can cause complications, or a host of other things.
While these results are tough to hear, there are options and we will make it thru. This does prolong our time in Durham but we are happy with our apartment. This week should be interesting to see where we go from here....
Burns
Dear Burns and Laura,
ReplyDeleteSo sorry to hear Monday results, but hopefully Wednesday will bring some better news from Dr. Chao...you all have been stalwart troopers and we know that will continue...as they say, "Hang in there!!!" I hope tomorrow will be a beautiful day for a walk outside where you can "smell the roses and listen to the birds"! You are an inspiration. Love and good wishes,
Jane and Lloyd Peterson
Burns--Your positive attitude is inspiring! Keep it up and we will keep checking in to see what the new game plan is. Sending positive thoughts your way :) Adair
ReplyDeleteHello! My son also had CGD and he had his BMT about 7 months ago. His little brother was his donor! I am so sorry that you have had complications. The road to a cure is definitely not an easy one, but try to keep your eyes on the prize...a healthy and normal life without CGD! You and your family will be in our prayers. If you'd like to check out our son's journey, his CaringBridge site is calebryan
ReplyDeleteTake care!
Trisha