Wednesday, August 29, 2012

DOT +142

Things are still going great!  Laura's family had there beach week last week and we had a great time.  After getting back to work so fast, it was nice to take a relaxing break.  My energy has been really good and no symptoms of any health issues have come up. 

I am still waiting to get back to golf till I get the ok from the doctor's.  I was concerned about my surgery and being extra careful.

Work has been great!  It's fun to get back in the swing with the great group we have here at Terminix.  I head back to the doc on Monday Sept. 10.  Hopefully I can get off some more medicines then....

Soon, I will be heading back to Dr. Buckley's clinic.  Which will be amazing to walk in there CGD free.  That will be an emotional but wonderful time!

Thanks for all that follow and the support we have had!

Hope too see everyone soon...

Burns

Saturday, August 18, 2012

DOT +131

Life is good! Laura and I are back in the swing of things. I am back to work full time and feeling really good. I still get tired after a long day, but it really is not that bad. I have been surprised how fast things recovered to this point. Seeing my labs next week will be exciting and I hope things have improved on that end.

We are heading out to the golf tournament today to see some golf. Since I cannot play yet, might as well watch it! Not sure when I can play again, but I hope shortly after labor day.

It has been great seeing everyone. The word sure has spread in Greensboro and the welcome from everyone back has been a humbling experience. Some people I never thought would know, have said something to me. All the prayers and support got us to today.

I really want to get off these medicines so I can get to an official discharge. That day will be when I can fully celebrate! And celebrate we will....



Thursday, August 9, 2012

DOT +122

Things are still going great!  We had an appointment with Dr. Chao this past Monday and most labs were improving and we don't have to go back for 5 weeks! My liver function studies were elevated but that could just be from all the medicines I have been on.  Those will hopefully come down soon.  My hemoglobin was 11.7, WBC 4.2, and creatinine 1.2.

My energy is coming back more and more each day.  I have had to be careful and not do too much too fast.  Laura and I have really enjoyed being in our own home!  (except for the ac giving us a big problem)  It has been great running into everyone around town and we hope to continue to get out and about more and more.  The dogs are getting used to being back home and I am getting back to work some.  It's been fun using my brain and thinking again, haha.

The idea of me being cured from CGD is starting to sink in each day.  I am not real sure how to describe it yet, but it is a powerful and wonderful feeling.  They still have me on a good bit of meds and those should start getting peeled back over the next few months.   

I will try to do a post each week or so till I get the formal discharge and am "done" with the transplant process.  I will let everyone know when the last post is. 

Hope too see many of you soon around town and thanks for all the prayers and support since Jan and since I was 2.  Crazy to think I am doing so well after that darn spleen finally came out! 

Thanks...Burns