Wednesday, May 16, 2012

DOT +36

We are heading in the right direction and my counts continue to do well. They still have a long way to go before they are considered stable, but they are good enough to get the day off from the clinic every once in a while. Today we have the day off!

They dropped a couple of my medicines yesterday and will be talking this week about dropping some more. I now have some of johns working cells so they are confident those cells are working and are beginning to do their job.

I am still on a lot of immunosuppressment drugs, so infection is still a big worry. The immunosuppressment drugs target a specific part of the immune system to prevent graft versus host disease. But good news is that the other part of the immune systems are working well.

Bringing me down from all these drugs can be tricky. We want to leave the drugs that support the suppressed part of the immune system and then take away the rest that are not needed. That will take all the doctors putting their minds together to make sure we do it right.

Otherwise, Laura and I are doing well. These days off are nice because we have been going to that clinic everyday since early January. I am still not eating much, but hopefully my appetite will come back soon.

Thanks for all the support!

2 comments:

  1. Burns- We had a good day of work up there on 8th, but obviously missed you. Enjoyed wathing Hall of Fame speeches with your parents the night before.

    Praying for you every day and so happy things are moving in the right direction. With all you and Laura are going through, just remember how great it will be when your tee shots go 50 yards further after John's cells fully kick in. You'll even be able to hit it past me and who would have ever thunk that.

    God Bless,
    B.Foster

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  2. We have such big smiles on our faces thinking of how well you are progressing and how thrilled we are for you and Laura!!!!! hopefully you all will be home soon and going strong!!
    Love to you both!
    Jane and Ross

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