Blackwell Brothers Bone Marrow Transplant: DOT +51

Thursday, May 31, 2012

DOT +51

I am back at the apartment! Doing better with my kidney functions better and potassium lower. They are keeping me on several iv antibiotics and one iv antiviral that I can get at the outpatient clinic daily.

Laura and I are both glad to be settled back in. We have an appointment tomorrow morning at 8 to see the next round of labs. There is a good chance I will need some more blood in the morning. (the antiviral medicine does that)

They ordered another test to see how the virus is going. The results show how much is there so we will have a better idea of how long to stay on some of the medicines.

Thanks for following the blog! Hoping to put some good news here soon....

2 comments:

AnonymousMay 31, 2012 at 9:41 PM
Burns,
The good news is you are out of the "big house" and tomorrow is your birthday .
Wish you were home to celebrate but with your courage and amazing attitude we know you will be back soon.
Happy Birthday,
Love,
Susan and Jimmy D
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Trish MooreJune 1, 2012 at 11:01 AM
Burns, happy birthday to you!!! Good to be let "out" just in the nick of time. But really, great news to be considered let-out-able!!! You and Laura and those docs are incredible. Have a very happy day today! All the best to you and Laura. Trish and John
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Thanks!

This is our blog to share the journey of a stem cell transplant between two brothers. Burns, who was diagnosed with CGD at age 2, and has been fighting the disease ever since. Burns needed at stem cell transplant in order to cure his illness. His older brother John, was recently tested by Dr. Rebecca Buckley, Burns' doctor since age two, and is a perfect stem cell donor match. With many prayers and advances in medicine, a bone marrow transplant is now an option for a "cure".

Here is where we begin our journey. Laura, Burns' wife, and Burns will be moving to Durham, January 1oth to be close to Duke. The blog will be updated by Laura, Burns, Derry (Burns & John Mom) John and Eliza (John's wife).