Friday, July 13, 2012

DOT +95

The doctors are pleased with the progress but he is still dealing with lots of pain.  His left side still has all of the fluid, but they say that movement and food will decrease the amount.  Today they took him off of the all liquid diet, so he has eaten some lemon pound cake from starbucks, a PB&J, and mom is bringing him a Wendy's baked potato!  Everybody is glad to see him eating again!!  This will help him regain lots of his strength, along with him getting a good night's rest.

Dr Buckley came by and surprised him with a visit yesterday!  I don't think anything else has raised his spirits more.  He was so glad to see her, and she was so encouraged with his surgery and its results.  We are so grateful for everything she has done- she has kept up with him throughout this whole process and has offered multiple pieces of advice, and even more support to us, but more importantly Burns.  They have the most special relationship- and it was made evident seeing the two of them visit together yesterday.  There is more between them than just your average doctor-patient relationship.  She has gotten him through every illness and bump in the road since he was two years old- she knows him in a special way that no one else does.  Burns is so ready to be done with this process, and have it all behind him.  He told me he wants to be back under Dr Buckley's care.  I told him that the whole point of this was to cure him of CGD and that he will no longer need to go to Dr Buckley anymore, he will just go to a regular GP.  I asked him how special will it be when he can email Dr Buckley simply to see how she is, and no longer have to describe how he feels; he smiled.

2 comments:

  1. Picture millions of fireflies with glistening wings that reflect like rainbows in the sun. Those are the prayers that are flying to heaven on your behalf. You are not alone.

    "It's hard to beat a person who never gives up." - Babe Ruth

    Another for the playlist - 'Get Back Up', tobyMac

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  2. Love you . Blantons

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