Blackwell Brothers Bone Marrow Transplant: DOT +56

Tuesday, June 5, 2012

DOT +56

We got there today and they had good news for Laura and I. Today was the last day of all iv antibiotics and antivirals. The hhv6 results are back and there were just traces left so they stopped the medicine. It should take a week or two for my counts to rebound from the damage the antiviral did to them.

Also, there is some news on the graft. They had a problem and only one of three test were ordered. Unfortunately, it was the one that was the least helpful but it was 96% donor! So they all think the other two can only be so bad if the other is 96% but they will not commit to saying we are in the clear. The others were drawn today and should take a week or so.

Since my counts were low, I did need another unit of blood today. Hopefully things will start to rise slowly now!

2 comments:

AnonymousJune 5, 2012 at 7:59 PM
Great news, Burns! We will keep praying. It is so nice to hear your encouraging news. Hope the good news continues!

We love you!
Emily, Doug, Miller and Grady
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Joan AustinJune 7, 2012 at 10:53 AM
This is very encouraging news, Burns. Hope and pray good news keeps coming your way! Keep us posted. Take care. Joan
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Thanks!

This is our blog to share the journey of a stem cell transplant between two brothers. Burns, who was diagnosed with CGD at age 2, and has been fighting the disease ever since. Burns needed at stem cell transplant in order to cure his illness. His older brother John, was recently tested by Dr. Rebecca Buckley, Burns' doctor since age two, and is a perfect stem cell donor match. With many prayers and advances in medicine, a bone marrow transplant is now an option for a "cure".

Here is where we begin our journey. Laura, Burns' wife, and Burns will be moving to Durham, January 1oth to be close to Duke. The blog will be updated by Laura, Burns, Derry (Burns & John Mom) John and Eliza (John's wife).