Blackwell Brothers Bone Marrow Transplant: DOT +61

Sunday, June 10, 2012

DOT +61

We are now past day 60 (round 2)! My counts are still hanging real low. WBC is .7 (needs to be above 3) and hemoglobin just cannot stay up long. I needed blood on Saturday and fluids today. For a few days I was feeling so much better, but my energy level has sunk back again some. Hopefully the counts will come in soon and my energy will return.

One thing that could be effecting my hemoglobin is the switch from my A+ blood type to my new B+ (johns blood type) blood type. That could be going on now but they are not sure. When they draw a type and screen, my blood type is still A+. Time will tell...

Otherwise we are good. We go in everyday now for the nupegeon shot to help my WBC and to check my levels. Wish I had better news but that will come soon!

Thanks for all everyone has done!

1 comment:

AnonymousJune 12, 2012 at 7:18 AM
Hang in there, Burns!!! Thinking of you!!!!
Tracy
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Thanks!

This is our blog to share the journey of a stem cell transplant between two brothers. Burns, who was diagnosed with CGD at age 2, and has been fighting the disease ever since. Burns needed at stem cell transplant in order to cure his illness. His older brother John, was recently tested by Dr. Rebecca Buckley, Burns' doctor since age two, and is a perfect stem cell donor match. With many prayers and advances in medicine, a bone marrow transplant is now an option for a "cure".

Here is where we begin our journey. Laura, Burns' wife, and Burns will be moving to Durham, January 1oth to be close to Duke. The blog will be updated by Laura, Burns, Derry (Burns & John Mom) John and Eliza (John's wife).