Thursday, January 12, 2012

Day before we start

Well, here we go.  Tomorrow is the big day to start Chemo for me and John starts his shots.  I have had all my pre-checkups, John has had all of his.  Laura and I have been in Durham most of the week working hard to get settled in.  I had a pimple go bad with an infection and that has caused us to be here this week for IV meds.  Just normal CGD stuff that I always deal with.  Another reassurance that we are doing the right thing…

Our apartment is nice.  Laura has brought some pictures and stuff to make it feel more like home.  We have a full kitchen, which we will have to put to good use since I will be on a restricted diet.  (no eating out for a while, boooo)  The Adult Bone Marrow Clinic is very nice and all the people seem great.  It is a little weird learning new faces (I was at the Children’s hospital for 32 years so I knew everyone). 

Here is the schedule:
         Friday:       Burns starts Chemo (2 Kinds and then Campath)
                           John starts his shots to boost his cell count
         Sat:            Same as above
         Sun:           Same as above
         Mon:          Same as above
         Tues:          Burns last day of Chemo
                           John starts stem cell collection
         Wed:          The big day!!  Burns receives Johns stem cells!
                           John will do a second collection if needed
Thurs:        Burns will receive second dose of stem cells if needed
         Fri ++++   Daily visits to the clinic… 

We have received many wonderful emails and prayers from everyone.  Thanks so much!!  

Below are some cool pics of the new Blackwell gear for 2012! 




6 comments:

  1. Best of Luck to you guys. You'll be in our prayers.

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  2. Prayers are heading your way daily. hope today went well. Love the rankins

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  3. Wishing you well! We love you lots and lots!

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  4. Lots of thoughts and prayers and well wishes your way!!! Love, Jennie T

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  5. What an amazing story and gift!!! It brings me to tears knowing what a strong brotherly bond you two must have to go through this together. My thoughts and prayers are with the whole Blackwell family. All the best in the coming days!

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  6. Each entry brings chills and teary eyes...constantly thinking and praying for y'all...much love!! xo, Elisabeth

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